Comments on: Twin to Twin Transfusion Syndrome Stories https://about-twins.com/pregnancy/twin-to-twin-transfusion-syndrome-stories/?utm_source=rss&utm_medium=rss&utm_campaign=twin-to-twin-transfusion-syndrome-stories Mon, 03 Jun 2019 11:11:23 +0000 hourly 1 https://wordpress.org/?v=6.8.2 By: Kate Phillipa Clark https://about-twins.com/pregnancy/twin-to-twin-transfusion-syndrome-stories/#comment-3147 Fri, 13 Jul 2018 10:59:59 +0000 https://about-twins.com/?p=2266#comment-3147 In reply to Becky.

Hi Becky,

Thank you for your comment, and yes, definitely – it’s an area we haven’t covered very well (yet), and we will get there. I’m deeply sorry for your loss. If you would consider sharing your story, you’re more than welcome to reach out to me at kate@about-twins.com. Best wishes to you and your family!

]]> By: Becky https://about-twins.com/pregnancy/twin-to-twin-transfusion-syndrome-stories/#comment-3146 Fri, 13 Jul 2018 03:10:56 +0000 https://about-twins.com/?p=2266#comment-3146 This was very well written. Would you consider writing about those whose twin babies don’t make it? An article of grief/ healing? And those within the sub groups of TTTS? TAPS, TRAPS, TOPS, etc. I was told my twins died of TTTS. They never had the fluid difference and one came out very pale, one very red. I now think they had TAPS instead and mine (and other identical twins) should have had weekly ultrasounds AND Dopplers.

]]> By: Michael Ray Overby https://about-twins.com/pregnancy/twin-to-twin-transfusion-syndrome-stories/#comment-951 Wed, 08 Mar 2017 05:38:20 +0000 https://about-twins.com/?p=2266#comment-951 Kate,
Thank you for this article, On Par with your usual work of the Highest Quality.There is a detail I believe that may be of interest to your readers, perhaps to a small group of them this could be potentially Lifesaving Knowledge: I seem to recall Crystal had Anterior Placentation, a state in which the Blastocyst which implanted then Cleaved did so on the Front (Anterior) Uterine surface. This happens perhaps 1/3 of the time in MoDi, & at similar Frequency in the Singletons. It is usually a Mere Curiosity, with no Modification to the basic risk factors of a MCDA gestation save for the fact that Maternal Movement Perception is impeded, sometimes Severely enough that Kick Counting as prescribed by UK NHS becomes Problematic, or occasionally Impossible. This normally Benign placental configuration becomes a Threat Factor if TTTS should affect the gestation severely enough that Surgical Intervention is necessary.

Then, it can Change Everything. The usual Points of Entry into the Uterine cavity are no longer valid. The Geometry of the operating field is truly distorted The Attending must be of sufficient skill to Map Out & Plot alternative ones that fit the mom,& effectively operate in a World turned quite literally “Upside Down”. Of the 41 practitioners in the US & Canada that do TTTS Laser, spread out over about 30 Centers, there are but 4 that have been positively identified as having sufficient skill in Anterior Placentation TTTS Laser such that their rates of Survival are not Significantly Hindered by the presence of this Anatomical Complication.These “Top Tier” Centers are Huntington Memorial in Pasadena CA, under Chmait, Johns Hopkins in Baltimore MD under Baschat, Denver Children’s in Colorado under Crombleholme Zaretsky & Associates, and finally Texas Fetal under Moise, Johnson & the Consortium, comprising nearly a dozen surgeons at that World Class Houston center,based at Children’s Memorial Herrmann Hospital. This is not to be confused with the group doing Fetal surgery at Texas Children’s Hospital, also in Houston.

Anterior Placentation. Usually a Triviality, taking on a Sudden & Paramount Importance should TTTS Strike.

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